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My journey through life and hardship as I rise back up from a disease that no one can understand. Not even those who study it for a cure really understand it.


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Long absence
May 19 - 0 comments

Yay me!
Mar 14 - 0 comments

A good day!
Mar 08 - 0 comments

A new day
Mar 03 - 0 comments

The banquet is over
Mar 01 - 0 comments

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Long absence


Posted on 2010-05-19 05:12:13
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hello everyone. I apologize I have been away for so long. We could no longer afford our internet. A kind soul doul donated two months of service to us so I am online again, and hopefully for good. It was very lonely with no interet here!
A quick update for you all. The doctors have changed my meds and things really seem to be improving. I am scheduled for surgery on June 17th for my sinuses and deviated septum. This will hopefully end the terminal sinus infection. I am looking forward to not ha...

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Yay me!


Posted on 2010-03-14 20:27:27
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I am so excited! i found a website where I can write my little stories and have them published. I get paid per view which isn't much but it is a little. I have to have like 1000 views to make $1.50 but thats really ok. I really just want to write and have them read!
 
Anyway, that just excites me. I'm still waiting for test results and have 3 more appointments scheduled. But I'm not going to dwell on any of it right now....

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A good day!


Posted on 2010-03-08 23:20:28
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The sun has shined all day and the temps are above 40! I'm loving it warmer because that means less joint aches. I can not wait for true Spring and Summer!
 
I have decided to really get serious about quitting smoking to. It's been a crutch for me and I need to lean on myself and not a detrimental habbit! Time to take some kind of control over my life and health. Wish me luck!...

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A new day


Posted on 2010-03-03 20:00:17
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Today is a new day! I am quitting smoking! Im tired of it and it isn't helping me get any better....I'm just done with it.
 
I got word back from the doctor. I am now a watch and wait patient. Not much thay can do for me right now. I won't let that get me down either. Today is a new day!...

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The banquet is over


Posted on 2010-03-01 23:38:30
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And I survived. I drank to much and forced myself to do more than I can. I am paying for it now but I wont regret it. I have pictures up on my facebook if anyone wants to see them. I spent most the night sitting down but danced a couple times. Everything hurts but I really had to put on a strong face. I couldnt face the questions of where have you been and whats wrong. I slathered on enough makeup to hide my pale skin and black circles. Plus it was subdued lighting so I made it through.
 
...

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Saturday


Posted on 2010-02-25 04:18:32
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So this coming Saturday is the annual Firemens Banquet. This is where we get free catered food, free alcohol, reminise(sp) about past year and awards are handed out. My husband is the President of the Fire department and pretty much runs this thing. He is so excited about it and how could I possibly tell him I really do not want to go? I can't. So suck it up buttercup!
 
Got a big snowstorm coming in tomorrow which means I am going to be trapped in the house! Oh wait...I don't really go a...

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I just need a shoulder


Posted on 2010-02-17 04:13:53
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Today i saw the rheumatologist. It was not good news. I'm hurting for me and for my family. My immune system may be shutting down. They are doing blood work to confirm it. 2 more prescriptions were added to my already overloaded medicine cabinet. I called the WalMart pharmacy to get the price. Ouch. They will only hold them for 7 days :(
 
i don't know what to do anymore. I dont know where to turn....

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Happy Valentines Day


Posted on 2010-02-15 05:07:30
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It was a better day than I thought it would be if you ignore the constant ache. My sweet husband actually borrowed money from a coworker to buy me flowers and my favorite chocolates. I felt so cared for and needed in that small gesture. My spirits really lifted.
 
My daughters cheerleading performance on Saturday was perfect! And we both took a long nap afterwards. I love that she will snuggle with me and try to make me feel better.
 
I hope you all have a wonderful day today as we...

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Blah


Posted on 2010-02-12 23:20:21
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Blah is all I can think of for the last two days. A lot of pain in my joints and just so tired. I'm trying hard to think of good things. Tomorrow my daughter has her first cheerleading performance. I can't wait to watch her!!...

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High Tension


Posted on 2010-02-11 04:54:14
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Im doing my best to find solutions. I really am. But my husband is so grumpy and taking it out on me. I know he doesn't mean to and I certainly understand the frustration. I shouldn't let it get to me. But I can't help it. 
 
He just left for work a few minutes ago.. I hate that he works nights.
 
It snowed all day. It is so cold and the cold just makes my joints ache so. My rheumatologist wants to add a prescription pain med but I refused. I don't want to take anything strong...

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