My URL: http://www.microgiving.com/profile/papabear3259 Offline |
Member Since: 05/09/08 | Login Count: 17 | Profile Views: 609 | Last Login: 06/17/08
Biography
My name is Bryce Satin; I am 49 years old Intersex born person. At birth the doctors picked wrong and removed the wrong parts so I am forced to live as a male with female genital. If this was not bad enough I was also blessed with being an insulin dependant diabetic and having SPMS (secondary progressive MS) I use a wheel chair full time as well as I am bladder and bowel incontinent. All my food is blended and thickened. My life is pretty much home bound.
That is me but this is not me… I have those things they are part of my life but they are not my life they are not what give me dignity and purpose. Since becoming sick, I have been living in spare bedrooms, garages, basements but still I did not let it stop me. I knew that someday I would find a place of my own one I could afford on SSI. I have dreams and goals and desires like other person. Each dream starts with a step and the first step was to find a place to call my own and to call home.
My Purpose
On February 1, 2008 after 6 years of looking and living in some not so nice places I have reached steps one. I have a place of my own. This in it self was the biggest day of my life that I can recall. When my illness hit I had a home, I had a job I was an RN I had a car. For the most part I had my health with the exception of the times I was down and out for a few days here and there, not knowing that those few down day were called MS flare-ups. In a blink of an eye all that was taken from me. One day I was no longer able to get up to go to work, that started a long trip down SSI road. Then I lost my driver license, I went back to school to learn a new line of work but with in a year of getting that degree I was no longer able to understand what I was reading and had fail my classes and with that and the health I had to drop out. That started me on my six years of being homeless, not in the sense of the word as in living on the street but having to relay on people to loan me a room or a place to sleep.
With the state help, my doctors help and some friends I now have a place that is mine. Step 2. making this a place that I can live and live with dignity. I have always been the giver the doer, not the person who is getting, but when you can no longer do things for yourself you have to know when to ask for help and this has been my biggest down fall.
However being a person that is Intersex I need more then most to make this place work for me. See I was given the gender female, so as a young child had many operations unknown to me until years later in my 30’s that they had made a mistake. My chromosomes are that of a male not female. I live and my id is male yet I have female genital. In the past year case workers and managers tried to find a nursing care place for me but as the state can not pay for a private room all the nursing homes did not want to take on such a person as me because they could not put me in a room with a male or female patient.
Please understand I am only 49 and I do not want to live in a nursing home, but I do know that I am more on a skilled nursing level of care. I have care worker that comes in and does a lot of things for me. I have OT, PT and a few others that come in to my home to show me how to live in my own place with the limits I have.
They all keep telling me it is just a matter of getting the right things in the home that will help me do the things I need to do. However when we find something that would do that, there is no money to get the item for me. Please understand also that I am so very grateful for what I have now that if that was all I would die a happy person. However, there are those that still think and feel that I need to be in a nursing place cause my need for adaptive items are so many.
I feel different, I know if I had few items I could get to a point once again where I could once again be a vital part of the human race and once again give back to those around me.
In bring this profile to a conclusion I would like to leave you with some links that I hope will help you understand about Intersex and MS…
Intersex Part 1 http://www.youtube.com/watch?v=eTHuzcm8KKs
Intersex Part 2 http://www.youtube.com/watch?v=V96Ul_SLrRM&feature=related
“I got MS but it don’t got me”
http://www.myspace.com/lbfightsms
My Interests
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Requests History
Help me regain some dignity and purpose as well as self-respect
Disabled
May 9, 2008
Help me regain some dignity and purpose as well as self-respect
Description: Items would enable me to take more control over my life. They would help me be able to stay in my home, and help me to reaching the next step of going back to school and becoming a working and productive person again.
The money would be used for the following items. I will alway look for used first. Any money left would be used place toward utility for the upcoming year.
Adjustable Diner/ Walker Tray
Blanket Support
Sleep-Knit Fitted Hospital Bed Sheets and Pillowcase
Digital Ear Thermometer
Lift Chair Recliner
Kitchen gadgets
Microwave-Blender-Juicer
Long table that can be used a counter that a wheel chair can sit under
4 Book shelves for clothes-Speaker phone
Cordless door announce so I can let people know I am on my way to the door.
Service dog- A/C - Small stackable washer/dryer
Computer that had good graphic and audio and memory with large screen
Computer desk that could seat a power chair
Much need sweat pants to hide leg bags and some new pull-over shirts
Category: Human Services, Financial Assistance
Why? The potential long term impact..
These items would not only make it easier for
me to do things for myself but would give me
the dignity I am looking for a way to feel
like I can take care of myself again and be in
charge of my life.
Progress:
$ (0%)
Still needed: $6000
Supporting Documentation:
Request was active: 562 days
Request created: May 9th, 2008 | Request views: N/A | Request modified 1 time(s) | Last modified: May 9th, 2008
To become a Productive person once again...
Disabled
May 13, 2008
To become a Productive person once again...
Description: Last night when I could not bear it any longer I asked my guild to show me the way. I have never been one to just ask for a hand out, I have always worked for everything I have. I am not scared of hard work and I know now it will take me longer to make money that once use to come so easy for me. BUT I know I can do it and I want a better life then living on disability and this plan I have worked up I think might do it…
I may have MS but I am not going to let it take me down with out a fight. There are a lot of things that would make my life better, yet I do need them. Making a life that is easy has never been what I have been about.
Tonight after watch a documentary on FDR and saw how he was able to become president in a time when it was unheard of a man being in a wheelchair to be president. I thought if he can do it then I can do it… After all I had learn to become so good at keeping the fact I am blind in one eye hide from the world, why can not I not learn to do someth..
Category: ,
Why? The potential long term impact..
Will help me become self reliant and
a productive person in society once
again...
Progress:
$ (0%)
Still needed: $300
Supporting Documentation:
Request was active: 562 days
Request created: May 13th, 2008 | Request views: N/A | Request modified 1 time(s) | Last modified: May 13th, 2008
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Member Since: 05/09/08 | Login Count: 17 | Profile Views: 609 | Last Login: 06/17/08 
