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| Biography |
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My name is Bryce Satin; I am 49 years old Intersex born person. At birth the doctors picked wrong and removed the wrong parts so I am forced to live as a male with female genital. If this was not bad enough I was also blessed with being an insulin dependant diabetic and having SPMS (secondary progressive MS) I use a wheel chair full time as well as I am bladder and bowel incontinent. All my food is blended and thickened. My life is pretty much home bound.
That is me but this is not me… I have those things they are part of my life but they are not my life they are not what give me dignity and purpose. Since becoming sick, I have been living in spare bedrooms, garages, basements but still I did not let it stop me. I knew that someday I would find a place of my own one I could afford on SSI. I have dreams and goals and desires like other person. Each dream starts with a step and the first step was to find a place to call my own and to call home. |
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On February 1, 2008 after 6 years of looking and living in some not so nice places I have reached steps one. I have a place of my own. This in it self was the biggest day of my life that I can recall. When my illness hit I had a home, I had a job I was an RN I had a car. For the most part I had my health with the exception of the times I was down and out for a few days here and there, not knowing that those few down day were called MS flare-ups. In a blink of an eye all that was taken from me. One day I was no longer able to get up to go to work, that started a long trip down SSI road. Then I lost my driver license, I went back to school to learn a new line of work but with in a year of getting that degree I was no longer able to understand what I was reading and had fail my classes and with that and the health I had to drop out. That started me on my six years of being homeless, not in the sense of the word as in living on the street but having to relay on people to loan me a room or a place to sleep.
With the state help, my doctors help and some friends I now have a place that is mine. Step 2. making this a place that I can live and live with dignity. I have always been the giver the doer, not the person who is getting, but when you can no longer do things for yourself you have to know when to ask for help and this has been my biggest down fall.
However being a person that is Intersex I need more then most to make this place work for me. See I was given the gender female, so as a young child had many operations unknown to me until years later in my 30’s that they had made a mistake. My chromosomes are that of a male not female. I live and my id is male yet I have female genital. In the past year case workers and managers tried to find a nursing care place for me but as the state can not pay for a private room all the nursing homes did not want to take on such a person as me because they could not put me in a room with a male or female patient.
Please understand I am only 49 and I do not want to live in a nursing home, but I do know that I am more on a skilled nursing level of care. I have care worker that comes in and does a lot of things for me. I have OT, PT and a few others that come in to my home to show me how to live in my own place with the limits I have.
They all keep telling me it is just a matter of getting the right things in the home that will help me do the things I need to do. However when we find something that would do that, there is no money to get the item for me. Please understand also that I am so very grateful for what I have now that if that was all I would die a happy person. However, there are those that still think and feel that I need to be in a nursing place cause my need for adaptive items are so many.
I feel different, I know if I had few items I could get to a point once again where I could once again be a vital part of the human race and once again give back to those around me.
In bring this profile to a conclusion I would like to leave you with some links that I hope will help you understand about Intersex and MS…
Intersex Part 1 http://www.youtube.com/watch?v=eTHuzcm8KKs
Intersex Part 2 http://www.youtube.com/watch?v=V96Ul_SLrRM&feature=related
“I got MS but it don’t got me”
http://www.myspace.com/lbfightsms
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Bryce's Request
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| Micro Giving, 4020 Thor Drive, Boynton Beach Fl 33426 |
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