Email:
  Password:

Remember me Forgot Password
 
Explore
Find a Cause
About
Home
  • Profile
  • About Me
  • Questionnaire
  • My Media
  • Journal
  • History
Penelope
I was diagnosed with a rare blood disorder. I live with my Mom who has MS. We have no hot water or wc access.
Location:
Doniphan, Missouri
My Birthday:
September 4
Occupation:
Disabled
Religion:
Christian - other
  My Network
Number of Referrals: 0
Donors Who Endorse this Cause: 1
My Mutual Connections: 1
My URL: http://www.microgiving.com/profile/penelopea-i-p
Offline |   Member Since: 05/01/09 | Login Count: 66 | Profile Views: 1527 | Last Login: 02/09/10
Biography
I'm 28 years old. I was diagnosed with a rare, life-threatening blood disorder called Acute-Intermittent-Porphyria when I was just 21. It caused me to have a severe attack that left me in a wheelchair and caused other life-threatening symptoms such as high blood pressure and I'm immune comprimised. I'm raising donations to help build a wheelchair-accessible home so I have more mobility. Disabled-world.com donated $500 to get it started. I've raised $800 total, but I need more donations. Im hoping that people will find it in their hearts to donate like Disabled-world did. My story is posted on my blog and on Disabled-world.com in the health and disabilities stories under the name "A Genuine Plea for Assistance", but I will post it in my journal here soon. Thank you for taking the to read this bio. Sincerely, Penelope B.
My Purpose
If I can help improve my life and my Mom's life by raising donations while stuck in bed I feel a lot better than just doing nothing. I support myself and my mother on just my disability every month, and it's just not enough to take care of us both the way we need.
My Interests
Raising donations, Knots, macrame, , Beaded jewelry, My dog and cat,
Getting To Know Me
Photos Of Penelope
(Photos: 9  |  Views: N/A  |  Last upload: January 30th, 2010 )


Our travel trailer
handmade beaded choker by me
Inside our travel trailer. Barely room to walk let alone use a wheelchair.
beaded choker
Icestorm 2009, we had to go stay in a shelter. There was no power for over a week.
Our travel trailer.
 
Video Of Penelope
Journal

I hope everyone here at Microgiving had a great Thanksgiving!


Posted on Tue 1 Dec, 04:43 am

To my microgiving friends,
Here is how my Thanksgiving went- It wasn't a big family to do here, it was just me and my Mom, together this year. We had a lot to be thankful for too, because a great family donated us a whole turkey dinner! We were very surprised and grateful because that meant that my mother wasn't going to have to try to cook a turkey in a toaster oven, but she was going to try anyway if she had too. :)
Not only that, but they also gave us a heater to help us keep warm throughout the cold Missouri winter here. So we had a great Thanksgiving because of the generiousity of a great family. A big thank you to them.
I'm still working on my beaded jewelry, making necklaces and bracelets and keychains. I'm not really sure how to sell them or where. I have lots of options though. I do plan to put that money from then in with the donations for my house fund. Anything to try to keep moving forward. There is a picture of one of my beaded necklaces in my media file  >>>

See more...
Requests History
   
Unexpected Illness
Disabled July 16, 2009
Penelope's Request
Unexpected Illness
Improve quality of life
Who I am:
Hi, my name is Penelope. I'm 28 years old. I was diagnosed with a rare blood disorder called Acute-Intermittent-Porphyria when I was 21 years old. I collapsed after surgery and I my first gran mal seizure which ultimately led me to be diagnosed with this rare blood disorder called AIP for short. This severe acute attack caused me to wind up in bed and need a wheelchair. My symptoms include pain, aenemia, iron defieciencies, immune defiecencies and I have neuropathy, which is nerve damage. Although I thought I would get better quickly, but I've been disabled and wheelchair bound for about 7 years now. I'm still bedridden, and now my Mom has become sick. She has multiple sclerosis and she has been turned down many times for disability. Both me and my Mom live on just my disability every month. We had planned many years ago to build a wheelchair-accessible house on the land we are slowly buying. We have enough each month to pay our bills but not enough to buy building materials for the house we desperately need. With some help from others though, it could happen much faster. So I decided to try online donations from my bed. I wrote my porphyria story and Disabled-world.com got the donations started with a $500 contribution and they've asked other individuals to donate as well. So, a big thank you to them! You can read my whole porphyria story here at microgiving in my journal or you can visit my pophyria blog, the link is in my journal here as well. I'll be posting pictures of the house build as soon as it starts, so you can actually see what your donations are going for. Also, I will keep you up to date with my journal postings.

What I need and what brought me to MicroGiving:
I need donations! and I love the support for fundraising here at microgiving and the friendships you make here. I found microgiving through an internet search for help raising online donations.

My circumstance and my need for help:
My Mother and I live in a travel trailer, that was loaned to us, on land we are slowly trying to buy. We were once homeless, we lost our home because I was bedridden and couldn't work and my Mom had to take care of me everyday. They took my independent living benefits away, because I had a moodswing, and the land our trailer was set on was sold and we had to lose it because we couldn't afford to have it moved and we didn't have land to move it to anyway. Just my Mom and I lived out of our van and we really felt all alone because we didn't have anyone to turn to for help. We were determined to pull ourselves up though and never be homeless again. A stranger loaned us a travel trailer to live in and we are slowly but surely buying the land the travel trailer sits on, with plans to build a small wheelchair-accessible home on this land, so I can use my wheelchair like I need to and I can get better quicker. When I was given this laptop by my Dad as a gift after I got sick, and Disabled-World encouraged me to write my story and then they donated also, I felt like people cared about us for the first time in a long time. Because of this, I've tried harder than ever to reach my goal and I am determined to not give up until I reach my goal.

Any Supports other than Microgiving:
Wish Upon a Hero soon or other wish site for a propane generator in case the power goes out, we will have heat.

Donor Amount Date
Rayhawk $3.00 Jan 30 '10
Kiwi $100.00 Jan 24 '10
John $25.00 Jan 16 '10
Michelle $50.00 Aug 03 '09
The MicroGiving Team! $75.00 Aug 03 '09
Goal
$500.00
51%
$253.00

This is a one time only expense assistance request .

Request active for: 13 days
Request created: Jul 21st, 2009
Request modified: 4 time(s)
Last modified: Dec 30th, 2009

Penelope`s
Mutual Connections
<< < 1 of 5 > >>
My Comments
Michie Feb 06, 2010 01:03:24
Thanks I didn't know that.  I was trying to figure it out but the site
is so different now.  :P
jas Jan 31, 2010 22:01:06
Thank you ! And thanks for the Tip , I can sure use them...lol

-jas
Penelope Jan 30, 2010 04:49:36
It's Snowing here in Missouri! My Mom took some video of our little
winter storm 2010 and I upoaded here to my media file, check it out
all. It's not that long, but it's pretty cool.
Penelope Jan 30, 2010 04:47:58
Awesome! Thank you Rayhawk
Rayhawk Jan 30, 2010 01:59:34
Psst...Donors can fund their accounts through Paypal again...Pass it
on :)
Penelope Jan 28, 2010 02:14:27
Thank you so much Kiwi, and all of you for your prayers
Rosa and Alex Jan 26, 2010 04:17:09
Hi, wanted to stop by and leave my prayers for you and your family.
Take care
Laurie T Jan 24, 2010 00:22:13
Thank you so much!
carterfamily Jan 08, 2010 01:26:24
Thank you for your prayers I will also pray for you and your family.
God Bless.
Amy
sunsetbayus Dec 15, 2009 19:05:15
Thanks and happy holidays to you. 
Penelope Dec 15, 2009 07:46:22
Merry Christmas everybody! Peace On Earth for all.
Chrissy Dec 09, 2009 06:17:22
I mostly use hemp. It seems like everyone likes the look of it..even
guys, and its the easist for me. Good luck on everything and Happy
Holidays.
paula Dec 08, 2009 11:25:48
Ty! 
sunsetbayus Dec 08, 2009 09:26:14
Thank you very much.. Happy holiday to you too. Hope all is well.
Thank you again.
jswanson Dec 02, 2009 09:37:04
We are doing good and had a nice Thanksgiving. 

 
Terms of use    |    Privacy Policy    |    Contact us   |    Sponsors   |    About Us    |    Our Blog     |    FAQ     |    SEO Company    |    Sitemap
4020 Thor Drive 2nd Floor Boynton Beach, FL 33426