My URL: http://www.microgiving.com/profile/penelopea-i-p Offline |
Member Since: 05/01/09 | Login Count: 66 | Profile Views: 1527 | Last Login: 02/09/10
Biography
I'm 28 years old. I was diagnosed with a rare, life-threatening blood disorder called Acute-Intermittent-Porphyria when I was just 21. It caused me to have a severe attack that left me in a wheelchair and caused other life-threatening symptoms such as high blood pressure and I'm immune comprimised. I'm raising donations to help build a wheelchair-accessible home so I have more mobility. Disabled-world.com donated $500 to get it started. I've raised $800 total, but I need more donations. Im hoping that people will find it in their hearts to donate like Disabled-world did. My story is posted on my blog and on Disabled-world.com in the health and disabilities stories under the name "A Genuine Plea for Assistance", but I will post it in my journal here soon. Thank you for taking the to read this bio. Sincerely, Penelope B.
My Purpose
If I can help improve my life and my Mom's life by raising donations while stuck in bed I feel a lot better than just doing nothing. I support myself and my mother on just my disability every month, and it's just not enough to take care of us both the way we need.
Recent changes in my life : My Mom has MS, multiple sclerosis, she's fighting for her disability, she's been turned down 4 times.
Favorite board game cards, crazy eights
What is most important thing in your life? My Mom
Pick five words that describe yourself : honest, giving, caring, sweet
Can you juggle ? No
What is your favorite day? July 4th
What is your favorite season? Fall
What is your favorite meal? Baked Chicken with mashed potatoes and gravy
What time do you wake up in the morning? Late
Comedy or Horror? Comedy
If you could build a house anywhere, where would it be? On my own land of course, this is what I'm raising donations for, a house.
What is your greatest ambition? To get better and to own my own business one day.
What characteristics do you think you've inherited from your parents? Talkitive, sweet, giving, caring
What do you never leave home without? My purse
Who would you most like to meet? James Franco or Keanu Reeves
If you had a million dollars, what would you do with it? Pay off my land, buy a house, build a place next to us for my sister and my neice, invest some, save some, and give some to my best friend of course.
Hobbies and Talents : I can draw and I am good at making jewelry.
List achievements and any future educational plans : I graduated high school with honors, and maybe someday I'll go to college, but I'd really like to own my own business of making jewelry.
Photos Of Penelope
(Photos: 9 | Views: N/A | Last upload: January 30th, 2010 )
Our travel trailer
handmade beaded choker by me
Inside our travel trailer. Barely room to walk let alone use a wheelchair.
beaded choker
Icestorm 2009, we had to go stay in a shelter. There was no power for over a week.
To my microgiving friends,
Here is how my Thanksgiving went- It wasn't a big family to do here, it was just me and my Mom, together this year. We had a lot to be thankful for too, because a great family donated us a whole turkey dinner! We were very surprised and grateful because that meant that my mother wasn't going to have to try to cook a turkey in a toaster oven, but she was going to try anyway if she had too. :)
Not only that, but they also gave us a heater to help us keep warm throughout the cold Missouri winter here. So we had a great Thanksgiving because of the generiousity of a great family. A big thank you to them.
I'm still working on my beaded jewelry, making necklaces and bracelets and keychains. I'm not really sure how to sell them or where. I have lots of options though. I do plan to put that money from then in with the donations for my house fund. Anything to try to keep moving forward. There is a picture of one of my beaded necklaces in my media file >>>
Description: This donation will be put with other donations that goes towards buying building materials
for a wheelchair-accessible home and handicapped bathroom. I was diagnosed with a rare
blood disorder called Acute-Intermittent-Porphyria when I turned 21 and it caused me to
wind up in bed and need a wheelchair. I am aenemic, iron defiecient, and I have immune
defiecencies. My whole story is on Disabled-World.com in the disability stories as 'A
Genuine Plea For Assistance', but I will also post my story on my journal here at
microgiving.com. Disabled-world.com got the donations going wih a $500 donation and
they've encouraged and invited other businesses, websites and individuals to donate as
well. I am hopeful of any donations from microgiving.com. This picture is of me and my
Mom, taken right after I was diagnosed. I will post pictures of the wheelchair-accessible
home build on Disabled-world.com and my blog and here at microgiving on my media file.
My progress: $800
This is a short term need assistance request for 2 adults
My message:This is a request for a donation to be put with other donations I've already raised. I'm sending my required documents soon.
Supporting Documentation: Penelope has the following documentation
Do you qualify for any additional help?: Medicare
What local/other agencies have you contacted?: Social Security Disability
Did you get denial letters? (if so are they attached to your request?): No, I was approved
What other sources of income do you or your family receive?: None.
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Donation Amount
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Who I am:
Hi, my name is Penelope. I'm 28 years old. I was diagnosed with a rare blood disorder called Acute-Intermittent-Porphyria when I was 21 years old. I collapsed after surgery and I my first gran mal seizure which ultimately led me to be diagnosed with this rare blood disorder called AIP for short. This severe acute attack caused me to wind up in bed and need a wheelchair. My symptoms include pain, aenemia, iron defieciencies, immune defiecencies and I have neuropathy, which is nerve damage. Although I thought I would get better quickly, but I've been disabled and wheelchair bound for about 7 years now. I'm still bedridden, and now my Mom has become sick. She has multiple sclerosis and she has been turned down many times for disability. Both me and my Mom live on just my disability every month. We had planned many years ago to build a wheelchair-accessible house on the land we are slowly buying. We have enough each month to pay our bills but not enough to buy building materials for the house we desperately need. With some help from others though, it could happen much faster. So I decided to try online donations from my bed. I wrote my porphyria story and Disabled-world.com got the donations started with a $500 contribution and they've asked other individuals to donate as well. So, a big thank you to them!
You can read my whole porphyria story here at microgiving in my journal or you can visit my pophyria blog, the link is in my journal here as well. I'll be posting pictures of the house build as soon as it starts, so you can actually see what your donations are going for. Also, I will keep you up to date with my journal postings.
What I need and what brought me to MicroGiving:
I need donations! and I love the support for fundraising here at microgiving and the friendships you make here. I found microgiving through an internet search for help raising online donations.
My circumstance and my need for help:
My Mother and I live in a travel trailer, that was loaned to us, on land we are slowly trying to buy. We were once homeless, we lost our home because I was bedridden and couldn't work and my Mom had to take care of me everyday. They took my independent living benefits away, because I had a moodswing, and the land our trailer was set on was sold and we had to lose it because we couldn't afford to have it moved and we didn't have land to move it to anyway. Just my Mom and I lived out of our van and we really felt all alone because we didn't have anyone to turn to for help. We were determined to pull ourselves up though and never be homeless again. A stranger loaned us a travel trailer to live in and we are slowly but surely buying the land the travel trailer sits on, with plans to build a small wheelchair-accessible home on this land, so I can use my wheelchair like I need to and I can get better quicker.
When I was given this laptop by my Dad as a gift after I got sick, and Disabled-World encouraged me to write my story and then they donated also, I felt like people cared about us for the first time in a long time. Because of this, I've tried harder than ever to reach my goal and I am determined to not give up until I reach my goal.
Any Supports other than Microgiving:
Wish Upon a Hero soon or other wish site for a propane generator in case the power goes out, we will have heat.
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Member Since: 05/01/09 | Login Count: 66 | Profile Views: 1527 | Last Login: 02/09/10 
